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Mom on the Run
Member Since: September 10, 2007 Last Signed In: July 21, 2008 Blog Views: 2663 Send To A Friend Sign Guestbook Add as a Friend
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I Hate Waiting.
You know, I normally consider myself a very happy person. I always try to look at the bright side of things; I tell myself that things could always be worse, and to be grateful that in my case, they aren't. Still, I'm almost at my breaking point.
Bee was diagnosed back in December 2006. We got our case worker, and he was referred for ABA therapy in February 2007. We have been waiting, ever so patiently, since then. I've called, written letters, begged, bargained, pleaded, even found a private therapist for play therapy once a week. Anything to help Bee. His therapist was an ABA consultant, and she thinks he would benefit tremendously from ABA. Because of the structure - the kid loves structure. Plus, there would be someone else who would give me and my husband a break. Honestly, we're burned out. All anyone tells us is that there are long waiting lists. But I know of people, diagnosed shortly before or even AFTER Bee, who have had programs in place for months. So what are we doing wrong? We've contacted our local autism support group - NOTHING. We're not sure if we need an advocate - if they can do anything for us. We have our home set up for therapy - it's been ready since March - all we need are the people to start the program. We even have tutors ready to work! It is so frustrating. Mostly, because I see the progress that others have made with this program, and I want that opportunity for my son. I'm not saying that I expect the same results, but at least give him the opportunity! He was diagnosed when he was 3 - he's almost 4.5 now... all this time has been squandered. And on top of all of this, we find out that there's more stuff going on with Bee. Talk of medication and more tests... still lots of uncertainty. On the plus side, both boys are home sick today. But it's been nice just hanging out, and not being in a car, driving to and from school, therapy and the dayhome. They're chasing each other around the sofa right now. They're happy. Things may be tough right now, but I know that it will get better. 1 comments from 1 users
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posted by
creatress
on Oct 29, 2007 at 04:03 PM
Ok, first on a side note I LOVE THE NEW BANNER for your blog!!! Did you do that? Or your man. It's divine. Sometimes it's a real blessing just to take a day off with the boys and enjoy each other. It sounds like you needed a day like that badly. Hang in there honey! You're amazing and divine. :)
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