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Life as I know it.
Member Since: October 19, 2007 Last Signed In: December 01, 2008 Blog Views: 62 Send To A Friend Sign Guestbook Add as a Friend
Cold Feet
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Six calls in to Alta and nothing, nada. No response. Good times.....sigh... Did get a call from a very warm and friendly person at SCOE who talked with me for a bit and let me know I am not alone now. We have help. Wow! What an emotional relief! I am getting cold feet now though. Not all of his problematic symptoms occur everyday, or at least not with the severity that had me calling the pediatrician in tears. Am I making it up? No Am I over-exaggerating? No Does he have good days? Yes I just have this fear that when they do come out he will be behaving like an average, normally developing toddler and they will look at my husband and I with a weak smile and explain to me their time is valuable and how important early intervention is and how there is a child out there with actual special needs who is going without proper diagnosis because they are wasting their time with my family who does not have anything more than an average toddler with temper tantrums who so clearly rules the roost. Ok, so even as I am writing this my son is pulling on my to come with him.......hold on... ... he just hand-led me over to the couch to help him up.... maybe we are on the right track.
I feel so tired today. Not physically, mentally. I feel terrible that I can't wait for the kids to go camping with the in-laws in 2 hrs. (and counting) I am beating myself up right now for wanting to have some time to myself. The hard part is that I will miss them as soon as they are gone. I just want someone else to take care of my little one right now. I am so exhausted. We finally got a referral to a pediatric neurologist. That is a start. I sent our ped a list of my observations (2 pages) and he finally, FINALLY sees things through my eyes. I understand they only see him for a few minutes each well-baby visit. I get that.... what I don't get is why after repeated requests for help and our observations that something just isn't right, why not believe us? Sure, they see patients all day everyday. That is also how often I see my child. I know what workds, and what isn't working. Trust me. Please.
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